Conor

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Hei alle sammen,
Jeg vil introdusere dere alle for sønnen min conor. conor er nesten 3 år gammel. født 2007. Han er en veldig lykkelig liten gutt og er alltid full av smil.
da jeg var gravid med conor, gikk alt bra til jeg hadde skannet og det viste at jeg hadde polyhydramneøs (overflødig væske rundt babyen). på dette tidspunktet visste jeg ikke at det var noe galt. Jeg gikk i arbeid 5 uker tidlig og conor veide inn på 7 kg 10 oz. som var veldig stor. leger kom til meg den kvelden og fortalte meg at de la merke til at conor hadde dysmorpiske egenskaper, og først trodde de at det var Downs syndrom som de åpenbart hadde feil!
conor hadde fôringsproblemer fra han ble født, han hadde problemer med å suge. 3 uker senere ble han sluppet hjem da han begynte å drikke av flasker. conor hadde problemer med hoftene og måtte ha på seg et bekkenbånd i et par måneder. dette ble utbedret .conor ble til slutt diagnostisert med PKS 14 måneder gammel, og det var et sjokk, men en lettelse samtidig at vi endelig fikk et navn på det han hadde. conor fikk mange brystinfeksjoner det første året, og han hadde en videoflueroskopi som viste at melk gikk i lungene, og det var dette som forårsaket hans problemer. så han fikk satt inn et neseslange hver 5. dag. Jeg ble opplært til å sette inn dette, og det var vanskelig, men det måtte gjøres. dette fortsatte i 6 til 8 måneder. conor har nå PEG-rør, og siden han fikk dette satt inn har han bare hatt noen få brystinfeksjoner.
conor har briller og har fått hørselen testet, hørselen hans er bare litt påvirket. så han kan høre oss. conor er forsinket utviklingsmessig, men han blir bedre etter hvert som ukene går. han sitter i 4 til 5 minutter og lager flere lyder vokalt.

conor er en lykkelig liten gutt, og vi elsker ham i små stykker og ville ikke forandre ham for verden !!!!!!

av Elaine Murphy, conors mammy.